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CIDP-Neuron

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP):
Addressing Diagnostic and Treatment Challenges

Now Available On Demand

  Register

Produced in collaboration with GBS|CIDP Foundation International
Support for this patient education program was provided by Grifols.

Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is a rare disorder in which the covering of nerves (a material called myelin) is damaged, leading to sensory loss and weakness over time – if left untreated, it leads to wheelchair dependence about 30 percent of the time.

This free, live video education program helps patients and caregivers:

  • Recognize the symptoms
  • Understand all the treatment options available to them
  • Identify sources of support for managing issues and complications associated with CIDP

Produced in collaboration with the GBS/CIDP Foundation International – a four-star charity that was founded in 1980 to serve communities affected by Guillain-Barre syndrome (GBS) and CIDP – this program provides important information to those newly diagnosed with CIDP and those already in treatment.

Register to access the full program on-demand.

   

Chapters

   

Speakers

Kenneth C. Gorson, MD

St. Elizabeth’s Medical Center

Kenneth C. Gorson, MD, is a professor in the Department of Neurology at St. Elizabeth’s Medical Center, Tufts University School of Medicine in Boston, Massachusetts. He has published more than 90 original peer-reviewed research articles, book chapters, and reviews pertaining to Guillain-Barre´ syndrome, chronic inflammatory demyelinating polyneuropathy (CIDP), paraprotein associated neuropathies, vasculitic neuropathy, and various other inflammatory and immune-mediated disorders of the peripheral nervous system. Dr Gorson’s clinical and research expertise extends to patients with neuropathies associated with diabetes, connective tissue disorders, and cancer, inherited peripheral neuropathies, and disorders of muscle, myasthenia gravis, and amyotrophic lateral sclerosis.

Amy E. Clarke, RN, IgCN

Diplomat Specialty Pharmacy

Amy E. Clarke, RN, IgCN, is the director of nursing clinical program services for Diplomat Pharmacy’s Specialty Infusion Group. Ms Clarke is a registered nurse who has worked in the specialty and home infusion space since 1994, and has completed more than 2000 intravenous and subcutaneous infusions to date. She has given multiple presentations on intravenous immunoglobulin (IVIG) and subcutaneous immunoglobulin (SCIG) administration specifics, including continuing education (CE) presentations for the National Home Infusion Association (NHIA), the Infusion Nursing Society (INS) and the Immunoglobulin National Society (IgNS). Ms Clarke is currently the Immunoglobulin National Society’s president emeritus for the 2016-2018 term.

Lisa Butler

GBS|CIDP Foundation International

Lisa Butler is the executive director of the GBS/CIDP Foundation International in Narberth, Pennsylvania. Ms Butler has a 10-year career in marketing and event planning for nonprofit organizations. Before assuming her current position as executive director, she managed the Foundation’s marketing and development programs, and was recognized by Patient Services, Inc. (PSI) with the 2016 Extraordinary Support Award. Ms Butler first of learned of the Foundation in 1992 (prior to joining the staff in 1993) when her father-in-law was diagnosed with Guillain-Barre syndrome (GBS).Ten years later, her son, Stuart, was diagnosed with GBS. Following Stuart’s recovery, she became the parent liaison for the Foundation for “parents with children diagnosed with GBS”.

Corbin Whittington

Patient Presenter - Executive Coach and Mentor

Corbin Whittington has over 38 years of broad industrial experience in engineering and manufacturing, has over 15 years of senior executive experience in multiple companies, and is an executive coach and mentor. He earned his BS degree from North Carolina A&T University, and his Master’s degree in engineering from New Jersey Institute of Technology. He is a Six Sigma Black Belt, and is well-versed in Lean, DMAIC and DFSS. Despite an untimely challenging illness that caused him to retire from his industrial career, Mr Whittington continues mentoring students and at-risk young men, coaching minorities in new managerial roles, and coaching entrepreneurs with new business ventures. He resides in North Carolina with his wife; together they have two sons, a daughter-in-law, and 3 grandchildren.

RESOURCES

 

Partners and Supporters

  • GBS|CIDP Foundation International