Produced in collaboration with BrightFocus Foundation
Support for this patient education program was provided by an educational grant from Biogen
Join us for “Families and Patients’ Journeys with Early Alzheimer's Disease,” a live interactive presentation taking place October 4 at 3:00 PM EDT. This is the last session of a 3-part series on the diagnosis, management, and supportive care of patients with Alzheimer’s. “Families’ and Patients’ Journeys with Early AD,” is split into 3 easy-to-digest and convenient modules, including Module 6, “Preparing for a new journey with AD and its disease-modifying agents”; Module 7, “Helping your loved one and yourself through the AD journey”; and Module 8, “Answering your burning questions about AD.” Register now to watch live or on-demand later.
Jin Hui Joo, MD, MA, Associate Professor of Psychiatry and Behavioral Sciences in Johns Hopkins Hospital’s Division of Geriatric Psychiatry, leads a panel of neurology and psychology experts and patient representatives. The panel will answer your most-pressing questions and help prepare families and loved ones for what’s ahead. Submit your questions to the expert panel now.
People diagnosed with Alzheimer’s disease (AD) and their caregivers often wonder what their journey will look like. As AD progresses, daily routines must be established and behavior and other issues dealt with, including communication challenges and completion of everyday tasks. Medical experts are also recognizing that early diagnosis of AD can improve patient outcomes. As AD is diagnosed earlier, the journey of those affected and their caregivers will change, and anticipation is that those affected will be able to play a larger role in planning decisions.
In addition, all other modules are now available for on-demand viewing. Note that this last module will answer many questions that were asked during sessions 1 and 2. Note that this last module will answer many questions that were asked during modules 1 and 2. Session 1, “What Do We Need to Know Before and After a Diagnosis of Alzheimer’s Disease,” includes Module 1, “What do we need to know about AD?” and Module 2, “Leveraging your AD care team.” Session 2, “Recognizing and Managing Early AD,” features Module 3, “What we should know about AD’s early signs and why it matters”; Module 4, “Breakthrough treatments for AD: Receiving the full benefits”; and Module 5 “Non-drug-related interventions.”
Session 1 - What Do We Need to Know Before and After a Diagnosis of Alzheimer’s Disease Now available on-demand.
Session 2 - Recognizing and Managing Early Alzheimer's Disease Now available on-demand.
Zaldy Tan, MD, MPH, FACP
Director, Cedars-Sinai Health System / Memory and Aging Program; Medical Director, Jona Goldrich Center for Alzheimer's and Memory Disorders; Carmen & Louis Warschaw Endowed Chair in Neurology; Professor of Neurology and Medicine, Cedars-Sinai Medical Center
Zaldy Tan, MD, MPH, FACP, is the director of the Memory and Aging Program at Cedars-Sinai Health System in Los Angeles, California, with primary oversight of the optimization of care for persons living with dementia throughout a large non-profit academic health system. He is the medical director of the Jona Goldrich Center for Alzheimer’s and Memory Disorders at Cedars-Sinai Medical Center, where he leads the research activities in Alzheimer’s disease and related dementias. Dr Tan holds the Carmen and Louis Warschaw Endowed Chair in Neurology and is professor of neurology and medicine at Cedars-Sinai Medical Center. His studies on brain aging and memory have been published in major medical journals and featured in the New York Times, Time, CNN, and other national publications.
Goldie Smith Byrd, PhD
Professor, Social Sciences and Health Policy. Wake Forest School of Medicine Director, Maya Angelou Center for Health Equity
Jin Hui Joo, MD, MA
Johns Hopkins Hospital Division of Geriatric Psychiatry
Jin Hui Joo, MD, MA, is an associate professor of psychiatry and behavioral sciences at Johns Hopkins University School of Medicine in Baltimore, Maryland. She provides clinical care in geriatric psychiatry and in integrated primary care settings. Dr Joo has been funded by the National Institute of Health to conduct health services research on depression and dementia care for underserved older adults to decrease their unmet needs. She has published articles on cultural competency training for the geriatric workforce, the meaning and use of religious coping among minority older adults, and disparities of depression care in primary care. Dr Joo uses qualitative and quantitative methods and a community-engaged approach to optimize relevance and sustainability of health service interventions.
BrightFocus Foundation in Clarksburg, Maryland
Nancy Lynn is senior vice president of strategic partnerships at BrightFocus Foundation in Clarksburg, Maryland, a US-based nonprofit organization that funds global research to accelerate scientific advancement and generate greater public awareness of Alzheimer’s disease, macular degeneration, and glaucoma. She also raises funds and catalyzes distribution partnerships to launch disease-related documentary feature films. Ms Lynn is a former member of the national board of trustees for the Crohn’s and Colitis Foundation of America and of the board of trustees for the Martha Graham Dance Company. She received her Master of Arts in the history of art and architecture from the Institute of Fine Arts at New York University.
Monica Vierling Hall
Monica Hall was an Alzheimer’s care partner with her father in a memory care unit from October, 2013 until April, 2017. She wrote Pouf, A true story about love, life, and Alzheimer’s, as part of her commitment to helping others maintain and enjoy their relationships with loved ones suffering from dementia, specifically Alzheimer’s. Monica hopes to help families see that these loved ones are just on a different walk in their lives and that there is incomparable beauty, joy, and laughter found in sharing this with them.
Interview Participant - Caregiver
Interview Participant - Spouse/Caregiver
Milap Nowrangi, MD, MS
Assistant Professor, Johns Hopkins University School of Medicine
Milap Nowrangi, MD, MBe, is a board-certified adult psychiatrist (APA) and geriatric neuropsychiatrist (UCNS). He is an Assistant Professor at Johns Hopkins where he conducts NIH-funded research in the cognitive neuroscience aspects of complex decision-making and the neural correlates of financial capacity in individuals with cognitive disorders. Dr. Nowrangi is a national expert in the field of Alzheimer’s disease and the related dementias. His clinical work focuses on the cognitive and neurobehavioral symptoms of Alzheimer’s disease. He sees patients at the Johns Hopkins Memory and Alzheimer’s Treatment Center, working with patients and their caregivers on the diagnosis and management of dementia and other conditions that affect cognition, every-day functional activities, and behavior.
Linda B. Sewerbridges-Williams, MSW
Social Worker / Case Manager, Kaiser Permanente
Linda B. Sewerbridges-Williams, CM, MSW, ASW, is an associated social worker with a Master of Social Work degree from Loma Linda University. She is a Health and Wellness coach and certified dementia care specialist. Currently, Linda is a Case Manager/Social Worker at Kaiser Permanente within the San Bernardino County Area Geriatric Medicine Department in Fontana, California. Ms. Sewerbridges has additional training and interest in Aging and Long-Term Care, Dementia: Hope through Research, Alzheimer's Disease: Unraveling the Mystery, and Alzheimer’s Disease and Other Dementias Certification. She is a member of Association of Black Social Workers – Greater Los Angeles, Alzheimer's Association International Society to Advance Alzheimer's Research and Treatment, NASW, NASW-CA, and NABSW.
Alzheimer’s Clinical Trials Finder:www.brightfocus.org/clinical-trials/search-clinical-trials
Number to call to talk to a live person at BrightFocus Foundation: 1-800-437-2423
Monica Vierling Hall’s website: www.monicavierlinghall.com