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Alzheimers

What Do We Need to Know Before and After a Diagnosis of Alzheimer’s Disease

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Produced in collaboration with BrightFocus Foundation
Support for this patient education program was provided by an educational grant from Biogen

For patients, Alzheimer’s disease (AD) is the second most-feared diagnosis after cancer. Disease-modifying treatments (DMTs) have shown significant clinical benefits and, with early diagnosis and ongoing supportive care, could transform the patient journey into one of empowerment and hope.

However, a lack of education about dementia and an underuse of support and treatment services can delay diagnoses and appropriate care. To realize the benefits of new treatments, it is imperative to recognize and diagnose the early stages of mild cognitive impairment (MCI) or Alzheimer’s as soon as possible. Racial and ethnic disparities in the prevalence and incidence of Alzheimer’s disease and in the accompanying quality of care must also be addressed. Empowering patients and families is an essential step toward these goals.

Join a panel of neurology and psychology experts and patient representatives for the first session, in a 3-part series on the diagnosis, management, and supportive care of patients with Alzheimer’s. The first session consists of two modules:

Module 1: What do we need to know about AD?

  • What a diagnostic means for the patient, family, and caregivers
  • What cognitive decline is in AD and its impact on daily function
  • Defining MCI and dementia
  • Steps we can take to help earlier diagnosis
  • Genetic, racial, and ethnic differences in AD
  • Current management approaches

Module 2: Leveraging your AD care team:

  • Working with your health care team
  • Managing depression, hallucination, anxiety, aggression, sleep
  • Financial and legal issues
 

Plan on attending session two scheduled for June 2021.

   

Speakers

Zaldy Tan, MD, MPH, FACP

Director, Cedars-Sinai Health System / Memory and Aging Program; Medical Director, Jona Goldrich Center for Alzheimer's and Memory Disorders; Carmen & Louis Warschaw Endowed Chair in Neurology; Professor of Neurology and Medicine, Cedars-Sinai Medical Center

Zaldy Tan, MD, MPH, FACP, is the director of the Memory and Aging Program at Cedars-Sinai Health System in Los Angeles, California, with primary oversight of the optimization of care for persons living with dementia throughout a large non-profit academic health system. He is the medical director of the Jona Goldrich Center for Alzheimer’s and Memory Disorders at Cedars-Sinai Medical Center, where he leads the research activities in Alzheimer’s disease and related dementias. Dr Tan holds the Carmen and Louis Warschaw Endowed Chair in Neurology and is professor of neurology and medicine at Cedars-Sinai Medical Center. His studies on brain aging and memory have been published in major medical journals and featured in the New York Times, Time, CNN, and other national publications.

Jin Hui Joo, MD, MA

Johns Hopkins Hospital Division of Geriatric Psychiatry

Jin Hui Joo, MD, MA, is an associate professor of psychiatry and behavioral sciences at Johns Hopkins University School of Medicine in Baltimore, Maryland. She provides clinical care in geriatric psychiatry and in integrated primary care settings. Dr Joo has been funded by the National Institute of Health to conduct health services research on depression and dementia care for underserved older adults to decrease their unmet needs. She has published articles on cultural competency training for the geriatric workforce, the meaning and use of religious coping among minority older adults, and disparities of depression care in primary care. Dr Joo uses qualitative and quantitative methods and a community-engaged approach to optimize relevance and sustainability of health service interventions.

Nancy Lynn

BrightFocus Foundation in Clarksburg, Maryland

Nancy Lynn is senior vice president of strategic partnerships at BrightFocus Foundation in Clarksburg, Maryland, a US-based nonprofit organization that funds global research to accelerate scientific advancement and generate greater public awareness of Alzheimer’s disease, macular degeneration, and glaucoma. She also raises funds and catalyzes distribution partnerships to launch disease-related documentary feature films. Ms Lynn is a former member of the national board of trustees for the Crohn’s and Colitis Foundation of America and of the board of trustees for the Martha Graham Dance Company. She received her Master of Arts in the history of art and architecture from the Institute of Fine Arts at New York University.

Monica Vierling Hall

Care Partner/Author

Monica Hall was an Alzheimer’s care partner with her father in a memory care unit from October, 2013 until April, 2017. She wrote Pouf, A true story about love, life, and Alzheimer’s, as part of her commitment to helping others maintain and enjoy their relationships with loved ones suffering from dementia, specifically Alzheimer’s. Monica hopes to help families see that these loved ones are just on a different walk in their lives and that there is incomparable beauty, joy, and laughter found in sharing this with them.

Evelyn Galvez

Interview Participant - Caregiver

John Hobbs

Interview Participant - Spouse/Caregiver

RESOURCES

 

Partners

  • BrightFocus Foundation