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CIDP Nurse

Treatment Options for CIDP:
Information for People Living with
CIDP and Their Caregivers

Now Available On Demand

  Watch Now

Produced in collaboration with GBS|CIDP Foundation International
Support for this patient education program was provided by Grifols.

Intravenous immunoglobulin (IVIG) is a treatment for Chronic Inflammatory Demyelinating Polyneuropathy (CIDP). Over the course of several hours, naturally occurring antibodies from healthy volunteers are given through a vein. IVIG is the only CIDP treatment that has received FDA, Canadian and European approval, and newer preparations of higher concentrations – called subcutaneous, or subQ – are being tested currently.

Join us for a free video education program that will help families facing CIDP:

  • Compare different treatment options with doctors
  • Understand side effects of each option, and learn how they can be managed
  • Make an IVIG treatment strategy in partnership with care teams

Produced in collaboration with the GBS/CIDP Foundation International – a four-star charity that was founded in 1980 to serve communities affected by Guillain-Barre syndrome (GBS) and CIDP – this program provides important information to those newly diagnosed with CIDP and those already in treatment.

Register to receive a recording via email.

   

Chapters

   

Speakers

Sami Khella, MD

University of Pennsylvania School of Medicine

Sami Khella, MD, is professor of clinical neurology and chief of the Department of Neurology at Penn Presbyterian Medical Center, University of Pennsylvania School of Medicine in Philadelphia. He co-founded the Penn Amyloidosis Center, one of the largest multidisciplinary amyloid programs in the United States, over 25 years ago. The center has extensive involvement in clinical research, including the pivotal RNA silencing trials. He has published many peer-reviewed papers on neuromuscular disorders, and amyloidosis in particular. Dr Khella is internationally recognized for his work; thus, he is a highly sought-after speaker on amyloid neuropathy and other causes of peripheral neuropathy. In addition, his enthusiastic teaching has earned him many awards.

Candice Reed

C&G Nursing

Candice Reid, RN, BSN, is an infusion nurse specialist and owner of C&G Nursing Service in Philadelphia, Pennsylvania. She has practiced nursing since 2006, and her care extends beyond treating her patients’ medical conditions. She takes a holistic approach in her practice because she believes that the well-being of her patients is crucial to their healing process. Candice and her nursing team provide patient-centered care and serve as both infusion nurses and advocates for their patients. She received her nursing degree from Immaculata University in Immaculata, Pennsylvania.

Betsy

Patient Speaker

Betsy Blake, PharmD, a full-time pharmacist and educator in Lexington, South Carolina, was diagnosed with Guillain Barre Syndrome in 2015, but her diagnosis was changed to CIDP after persistent relapses. She received IVIG infusions every 3 weeks for several months, then plasmapheresis to rescue her from a progressive paralysis. Over the past few years, she has continued to receive IVIG infusions every 4 weeks. Betsy currently serves as a liaison for the GBS-CIDP Foundation International to provide support to patients with GBS, CIDP, and other variants. She has also worked to advocate for legislation to support IVIG home infusions for patients with CIDP. Her experience as a CIDP patient has enhanced her professional skills working with patients and students to improve health outcomes.

 

Partners

  • GBS|CIDP Foundation International